Saturday, April 4, 2009

Man, this sucks

So this has been an insanely bad week. Pain has gotten much worse. My work week was only 2.5 days long, but I seriously questioned my ability to keep my job. I can't decide to just not work... I carry the insurance, not to mention the fact I like my job and I don't want to think about what would happen to me if I didn't have somewhere to go every day. There are people who live with this for years... decades even. Well, they don't work, and they end up on months long waiting lists to see neurologists who accept MCD and get spinal taps in the ER (Highly NOT Recommended). So I found myself saying over and over, "I need a plan." Yeah... I don't have one of those yet, no clue actually. Just "do what you can and let go of the rest" and the fear of the day when that will no longer be good enough.

Anyway, I saw my neurologist on Friday. He's an odd fellow. He seems to be in his 50's and was probably home schooled (no offense). He just lacks social skills, that I would almost peg him for having a personality disorder of sorts. Well, I described how my pain has gotten worse, how I've noticed very subtle vision changes (but I am very hypocondriacical), and the facial tingling. I actually got a reaction out of the facial tingling bit. So he upped the dosage on two of my meds, should take a week to feel better he says. I ask when we will begin to talk about shunt. He said a shunt will happen when it is necessary to save my vision. So, I see my retina dr. in May, but hopefully new med mix will have my pressure down and my eyes will be okay.

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